Things are going well here now. We had a rough bought with the flu for a week or so where all 3 kids were sick. It seemed like they would never get better but they are all finally feeling much better. Korbin is finally getting his energy back and going back to the happy boy that we all know and love. It was so hard not seeing him even crack a smile for days on end. He always has a smile on his face so we knew he was sick. The flu hit him harder than the rest and it took it's toll. He has lost 2 lbs and is now back down to 16 lbs. Months to gain and a week to lose.
All in all he is doing great. He is still not sitting on his own but seems to have finally gotten past the plateau we have been stuck on for months. He is so close to sitting but just still doesn't quite have it. We are really working on it. It is getting harder and harder watching babies in his age group learning more and more skills while he seems to have just gotten stuck. He wants to do so much but just can't physically figure it out. I know you aren't supposed to compare and all babies develop at their own pace but it is almost a slap in the face sometimes.
Korbin no longer has to wear the splints on his hands. His hands are open almost all of the time now which is wonderful. Now that he has made this progress, his fine motor skills with his hands has really improved. We are still pretty sure that he is going to need a brace on his foot. The muscle tone in his right foot has not let up any over the past months. We will approach that when he is pulling up and weight bearing. I have no idea when to even expect any of that to happen though since we are still working on the sitting.
We go next week to the eye Dr. to schedule his eye surgery unless by some chance things have corrected themselves although I don't think we are going to be able to slide out of this surgery like we did the last. I will say however that I would much rather eye surgery over brain surgery any day although any surgery stinks. We also see the neurologist in a few weeks. Not sure how I feel about that at this point. I am really nervous though.
We are still battling to be able to have Korbin see a physical therapist on a regular basis. Turns out that since he hasn't really missed any major motor milestones the insurance doesn't feel that he needs it. Hopefully we will be able to resolve this soon since he is quickly approaching the point where he should be pulling up, cruising and essentially walking.
I will post again when we find out when his eye surgery is.
Thanks for all of the continued prayers.
Sabrina
Monday, March 30, 2009
Thursday, February 26, 2009
Just a quick update
Nothing much new to report which is a very good thing. Korbin is quickly approaching 1 year old. He is 10.5 months old, 8 months adjusted. Hard to believe. He is getting so big so fast. He is now right at 17 lbs. He is such a happy and content baby. He loves to smile and just loves anyone talking to him. He is very motivated to try new things which has worked in his favor when it has come to reaching milestones.
Our biggest problem right now is the insurance company being stingy with his physical therapy. Unfortunately, the fact that he hasn't really missed any milestones has caused the insurance company to cut back his therapy while the therapist feels that he needed it increased. They only consider the numbers and didn't take anything else into account. He has developed a bad habit of hyperextending his back both while playing on the floor and being held. When he is on the floor doing this he looks like he is doing a back bend. At times it looks like he is about to do a back flip. He will place the very top of his head near his forehead on the floor and push his bottom and back up to the point that a ball could easily roll under him. This obviously isn't any normal kind of posture. He will arch back when he is being held too and does not like it at all when he is prevented from doing so.
He is still not sitting on his own and I am beginning to become impatient for him to master this skill. The most frustrating part is that he has just plateaued on the skill. He has been "almost there" for 2 months now. I am sure that the skill will come in time but as he is becoming too big for his infant carrier (he has about 5 lbs left) I am beginning to fret over what I am going to do when he is no longer in the carrier. Right now, when we go to the store, I just put his carrier in the back of the cart (not too keen on putting a carrier on the top) and he just hangs out. He can't sit well even propped in the front of the cart and with him arching the way he does he hits his back and starts screaming. Same goes for if we go out to eat. He can't really do those high chairs either so we just carry in his carrier. I think a lot of my stress comes from the fact that the reality is setting in. We may be having to make modifications to a number of things. Typically, when a child outgrows the infant carrier they can sit up so there usually isn't a problem. That has been my experience anyway.
We still don't have an official diagnosis yet and the therapists still dance around the subject but to me it feels like the elephant in the room that no one wants to talk about but we all know is there. Our pediatrician has been the only one that hasn't beat around the bush. He did at first but not so much anymore but I don't think that he makes things official anyway so I don't guess it really matters.
Thanks again everyone for keeping up with our little warrior. Please continue to pray for his continued success and for my patients as we begin to battle the beurocracy that is insurance.
Sabrina
Our biggest problem right now is the insurance company being stingy with his physical therapy. Unfortunately, the fact that he hasn't really missed any milestones has caused the insurance company to cut back his therapy while the therapist feels that he needed it increased. They only consider the numbers and didn't take anything else into account. He has developed a bad habit of hyperextending his back both while playing on the floor and being held. When he is on the floor doing this he looks like he is doing a back bend. At times it looks like he is about to do a back flip. He will place the very top of his head near his forehead on the floor and push his bottom and back up to the point that a ball could easily roll under him. This obviously isn't any normal kind of posture. He will arch back when he is being held too and does not like it at all when he is prevented from doing so.
He is still not sitting on his own and I am beginning to become impatient for him to master this skill. The most frustrating part is that he has just plateaued on the skill. He has been "almost there" for 2 months now. I am sure that the skill will come in time but as he is becoming too big for his infant carrier (he has about 5 lbs left) I am beginning to fret over what I am going to do when he is no longer in the carrier. Right now, when we go to the store, I just put his carrier in the back of the cart (not too keen on putting a carrier on the top) and he just hangs out. He can't sit well even propped in the front of the cart and with him arching the way he does he hits his back and starts screaming. Same goes for if we go out to eat. He can't really do those high chairs either so we just carry in his carrier. I think a lot of my stress comes from the fact that the reality is setting in. We may be having to make modifications to a number of things. Typically, when a child outgrows the infant carrier they can sit up so there usually isn't a problem. That has been my experience anyway.
We still don't have an official diagnosis yet and the therapists still dance around the subject but to me it feels like the elephant in the room that no one wants to talk about but we all know is there. Our pediatrician has been the only one that hasn't beat around the bush. He did at first but not so much anymore but I don't think that he makes things official anyway so I don't guess it really matters.
Thanks again everyone for keeping up with our little warrior. Please continue to pray for his continued success and for my patients as we begin to battle the beurocracy that is insurance.
Sabrina
Monday, February 2, 2009
Another piece of good news
I am a little late posting on this but there is good news. We had our neurosurgeon visit last week along with Korbin's 9 month check up. After a very long day in New Orleans filled with timing issues and the problems that often accompany dealing with multiple departments, Korbin had a CT done and we finally got to sit down with the NS. We were told that there is still no need for a shunt (YAY!!!) and that we would not have to return for 6 whole months! That gave me the impression that he is confident that Korbin is doing well. We will have another MRI done in 6 months and that will likely be the last one for a very long time depending on the results. We did confirm that Korbin indeed has Dandy-Walker Varient but a very mild case which could go without notice. DWV is the best case scenario of the DW diagnosises. That was very good news!
The next day we had his 9 month check up and everything looked great. His iron was fine and everything else looked good. He did have an ear infection that we were unaware of but some antibiotics will fix that right up. He weighed 16lbs 14.5 oz and was 26 inches long. He is finally on the charts for his actual age. The Dr. and I did have a conversation about cerebral palsy. Korbin is now at an age where we can really see how he is developing. He has hit all of his milestones although some have been a bit late even for his adjusted age but he has hit them none the less. He is still not sitting unassissted and is on the verge of being late for that which will likely in turn make him late accomplishing other major feats such as pulling up and eventually walking. All of the Dr.s and therapist assure me that they have no doubt that he will walk (which has been one of my major fears all along) even if it is a little late. He may also require a little assisstance such as a brace or something since he has some muscle issues in his feet and toes. Although it will likely be the neurologist that officially hands us the diagnosis on a silver platter, the pediatrician has all but assured me that he does have cerebral palsy. I have had to really push for someone to give me the information straight instead of dancing around the reality. I know that they have been trying to give him the benefit of the doubt but I am really ready to just finally have it said so I can proceed to deal with it mentally. I want nothing more than for him to be completely healthy and unaffected but I know that something is not completely right and it is a really tough mental game with everyone beating around the bush. I guess until it is official official I will always harbor a little bit of hope in the back of my mind that maybe, just maybe everything will be perfectly fine.
I know that it shouldn't make a difference one way or the other since it really won't change anything but it really just comes to a point that you want to go ahead and hear it so you can go through the grieving process. He is doing really well so that plays a huge part in my not being too terribly devistated at this point. He is a very happy and easy going baby with a spitfire temper. He is "crawling" everywhere and is doing well with his eye patches and his splints on his hands. Hopefully we won't have to do the splints for too long though. He is truely a blessing.
Everything is really going well overall. We haven't had any major setbacks for quite awhile. He has come so far. I would like to take the opportunity to mention that I have decided to get involved with my local chapter of March of Dimes. I will be participating in the March for Babies in May. March of Dimes played a big part in Korbin's NICU success. Medical science has come so far and the only way for it to advance farther is research and that research must be funded. Also, March of Dimes provides support for families in the NICU by trying to make things just a little bit easier during what is a very difficult time for families. The March of Dimes ultimate goal is to see a time where EVERY baby is born healthy. If you would like to sponsor us in our March for Babies, please click on the button on this page and it will take you to my page where you can donate. If you are not able to donate money, please contact your local chapter to offer services. This has become very important to me. Honestly, I knew about MOD but never really gave it much thought until my little boy almost died and would have died if it weren't for the good lord above and the knowledge achieved through research that MOD supports.
Thanks again and I appreciate anything that you can do.
Sabrina
The next day we had his 9 month check up and everything looked great. His iron was fine and everything else looked good. He did have an ear infection that we were unaware of but some antibiotics will fix that right up. He weighed 16lbs 14.5 oz and was 26 inches long. He is finally on the charts for his actual age. The Dr. and I did have a conversation about cerebral palsy. Korbin is now at an age where we can really see how he is developing. He has hit all of his milestones although some have been a bit late even for his adjusted age but he has hit them none the less. He is still not sitting unassissted and is on the verge of being late for that which will likely in turn make him late accomplishing other major feats such as pulling up and eventually walking. All of the Dr.s and therapist assure me that they have no doubt that he will walk (which has been one of my major fears all along) even if it is a little late. He may also require a little assisstance such as a brace or something since he has some muscle issues in his feet and toes. Although it will likely be the neurologist that officially hands us the diagnosis on a silver platter, the pediatrician has all but assured me that he does have cerebral palsy. I have had to really push for someone to give me the information straight instead of dancing around the reality. I know that they have been trying to give him the benefit of the doubt but I am really ready to just finally have it said so I can proceed to deal with it mentally. I want nothing more than for him to be completely healthy and unaffected but I know that something is not completely right and it is a really tough mental game with everyone beating around the bush. I guess until it is official official I will always harbor a little bit of hope in the back of my mind that maybe, just maybe everything will be perfectly fine.
I know that it shouldn't make a difference one way or the other since it really won't change anything but it really just comes to a point that you want to go ahead and hear it so you can go through the grieving process. He is doing really well so that plays a huge part in my not being too terribly devistated at this point. He is a very happy and easy going baby with a spitfire temper. He is "crawling" everywhere and is doing well with his eye patches and his splints on his hands. Hopefully we won't have to do the splints for too long though. He is truely a blessing.
Everything is really going well overall. We haven't had any major setbacks for quite awhile. He has come so far. I would like to take the opportunity to mention that I have decided to get involved with my local chapter of March of Dimes. I will be participating in the March for Babies in May. March of Dimes played a big part in Korbin's NICU success. Medical science has come so far and the only way for it to advance farther is research and that research must be funded. Also, March of Dimes provides support for families in the NICU by trying to make things just a little bit easier during what is a very difficult time for families. The March of Dimes ultimate goal is to see a time where EVERY baby is born healthy. If you would like to sponsor us in our March for Babies, please click on the button on this page and it will take you to my page where you can donate. If you are not able to donate money, please contact your local chapter to offer services. This has become very important to me. Honestly, I knew about MOD but never really gave it much thought until my little boy almost died and would have died if it weren't for the good lord above and the knowledge achieved through research that MOD supports.
Thanks again and I appreciate anything that you can do.
Sabrina
Tuesday, January 13, 2009
9 Months Old
9 months already. Time flies when you're having fun (or inundated with Dr.'s and therapy appointments). It has been a long and sometimes bumpy road but here we are. Korbin is doing so great and I am beyond proud. He has come so far but he still has a very long road ahead of him. He is growing very well and weighs in now at about 16 lbs. He has continued to meet most of his milestones on time with some exceptions but overall he is developing well. He is a very happy baby and always has a smile for anyone who speaks to him. He has brought joy to the lives of everyone around him.
Right now, things are fairly calm. He sees his pediatrician every month for a Synagis shot to try and prevent RSV. He does very well with the shots. At the moment, we are seeing the OT and PT on an alternating schedule that allows for him to be seen once a week by one of them. I mentioned before about a couple milestones that he is late on or has missed. They seem really minor to me right now in the over all scheme of things. The missed milestone is the ability to grab a toy with one hand and transfer it to the other. I personally believe that this is caused by his hands wanting to stay fisted. We are going to be trying to fix that problem though. We have ordered him splints for his hands. They look almost like batting gloves with a stiff thumb opening. We should be getting those in soon. The other milestone that they tell me he is a bit late on is babbling using consonants. I am not too concerned about that one right at this moment but am hoping he will start soon. He is still not sitting unassisted but the therapist is giving him until February to master this skill before she marks it as late or missed. We have been intermitently struggled with solid foods but he seems to be improving.
We have a very busy few months ahead of us. After seeing the eye Dr. a couple times, it has been decided that we will schedule eye surgery at our next appt. in April. He has a lazy and crossed eye (the same eye). We have been patching his good eye and will continue to do that until his surgery. The patching seems to really be helping his lazy eye. She told me that the average number of surgeries for children who present problems before a year is 2 so this is likely not going to be our only one.
We will be going back to see the Neurosurgeon in two weeks. Korbin will have another CT scan done but this time he will be sedated as he is older now and the chance of him being still for the procedure is highly unlikely. The NS visits always make me nervous so for the next couple weeks I will be a bundle of nerves. It will be good to be able to have another discussion with him since last time we saw him it was nothing short of chaos. I will be discussing the CP issue as well as making sure that my understanding of his confirmation of Dandy-Walker Varient was accurate.
Korbin's therapist will re-evaluate him in February. They have both informed me that this evaluation will likely result in more frequent visits to both therapists. This will put us seeing them both weekly rather than bi-weekly. I believe they had mentioned something about a speech consult at some point. So far, his tone has not changed over the past few months. It is good that it hasn't gotten any worse but we were hoping that it would improve. We also discovered that he has increased tone in his cheeks. Who knew that any of this could affect the mouth? I guess it shouldn't me surprising considering the mouth is made up of primarily muscle and tissue.
In March we will be seeing the Pediatric Urologist in regards to his hypospadia. I am not sure about that appt. but assume that it will just be a consult. Also in March or possibly April we will be seeing the Neurologist again.
I have discussed with the therapists in length about the impending diagnosis of CP. Both feel that at this point a diagnosis is inevitable even if it is mild. They informed me that they don't make the call nor does the pediatrician. They told me that the Neuro or the NS would make the official diagnosis. That being said, we could be 2 weeks from it being official or 3 months. I have worked very hard to prepare myself for this diagnosis but as the time draws near, I find myself hoping that they are all wrong. I know that isn't realistic. Months ago I diagnosed him myself in my head hoping that would lessen the blow when the time came but I am beginning to think that it may not work. The therapist made a valid point when she told me that the diagnosis is just a word on paper and doesn't change anything about him or his plan of care. It is just a word. I understand what she is saying but when it is on paper it means that it is real and there is no denying it.
Well, thanks for keeping up with my little man's progress and praying for him. He is really doing so well and I have no doubt that everyone's prayers played a part. I will update again after our next round of appts. in 2 weeks.
Sabrina
Right now, things are fairly calm. He sees his pediatrician every month for a Synagis shot to try and prevent RSV. He does very well with the shots. At the moment, we are seeing the OT and PT on an alternating schedule that allows for him to be seen once a week by one of them. I mentioned before about a couple milestones that he is late on or has missed. They seem really minor to me right now in the over all scheme of things. The missed milestone is the ability to grab a toy with one hand and transfer it to the other. I personally believe that this is caused by his hands wanting to stay fisted. We are going to be trying to fix that problem though. We have ordered him splints for his hands. They look almost like batting gloves with a stiff thumb opening. We should be getting those in soon. The other milestone that they tell me he is a bit late on is babbling using consonants. I am not too concerned about that one right at this moment but am hoping he will start soon. He is still not sitting unassisted but the therapist is giving him until February to master this skill before she marks it as late or missed. We have been intermitently struggled with solid foods but he seems to be improving.
We have a very busy few months ahead of us. After seeing the eye Dr. a couple times, it has been decided that we will schedule eye surgery at our next appt. in April. He has a lazy and crossed eye (the same eye). We have been patching his good eye and will continue to do that until his surgery. The patching seems to really be helping his lazy eye. She told me that the average number of surgeries for children who present problems before a year is 2 so this is likely not going to be our only one.
We will be going back to see the Neurosurgeon in two weeks. Korbin will have another CT scan done but this time he will be sedated as he is older now and the chance of him being still for the procedure is highly unlikely. The NS visits always make me nervous so for the next couple weeks I will be a bundle of nerves. It will be good to be able to have another discussion with him since last time we saw him it was nothing short of chaos. I will be discussing the CP issue as well as making sure that my understanding of his confirmation of Dandy-Walker Varient was accurate.
Korbin's therapist will re-evaluate him in February. They have both informed me that this evaluation will likely result in more frequent visits to both therapists. This will put us seeing them both weekly rather than bi-weekly. I believe they had mentioned something about a speech consult at some point. So far, his tone has not changed over the past few months. It is good that it hasn't gotten any worse but we were hoping that it would improve. We also discovered that he has increased tone in his cheeks. Who knew that any of this could affect the mouth? I guess it shouldn't me surprising considering the mouth is made up of primarily muscle and tissue.
In March we will be seeing the Pediatric Urologist in regards to his hypospadia. I am not sure about that appt. but assume that it will just be a consult. Also in March or possibly April we will be seeing the Neurologist again.
I have discussed with the therapists in length about the impending diagnosis of CP. Both feel that at this point a diagnosis is inevitable even if it is mild. They informed me that they don't make the call nor does the pediatrician. They told me that the Neuro or the NS would make the official diagnosis. That being said, we could be 2 weeks from it being official or 3 months. I have worked very hard to prepare myself for this diagnosis but as the time draws near, I find myself hoping that they are all wrong. I know that isn't realistic. Months ago I diagnosed him myself in my head hoping that would lessen the blow when the time came but I am beginning to think that it may not work. The therapist made a valid point when she told me that the diagnosis is just a word on paper and doesn't change anything about him or his plan of care. It is just a word. I understand what she is saying but when it is on paper it means that it is real and there is no denying it.
Well, thanks for keeping up with my little man's progress and praying for him. He is really doing so well and I have no doubt that everyone's prayers played a part. I will update again after our next round of appts. in 2 weeks.
Sabrina
Wednesday, November 26, 2008
Thanksgiving - So much to be thankful for
Tomorrow is Thanksgiving and we have so much to be thankful for. Korbin is doing absolutely wonderful. He is 7 months old now and weighs 14 lbs 14ozs. He is thriving and developing right on track for his adjusted age which is nearing 5 months old. He is getting up on all fours and rocking and is able to get just about anywhere he needs to go although it does take a little time. He always has a smile for us and thinks just about everything is funny. He is such a joy.
We are still watching his progress with his fisted hands and his foot that has excess tone. His legs also have a bit more tone than normal which may prevent him from chewing on and playing with his feet but that is pretty small in the grand scheme of things. The OT and I discussed again the likelyhood of him being diagnosed with CP since he is a bit older now. What she told me wasn't really surprising. She believes that he will be diagnosed with at least a mild CP since he just hasn't let go of the excess tone. We have noticed him compensating for his fisted hands by grabbing things like his bottle with his fists. So far though, it seems like the worst case scenario is him needing AFO's or braces on his foot and possibly splints on his hands at night. If that is all we will need then I wm okay with that.
I realized tonight how raw I still am about the trauma of his birth. A song on the radio touched a nerve tonight and made me see that I am still not "over" his almost tragic birth. I still think about it regularly and thank God daily for giving him to me and allowing him to stay with me but I guess I didn't realize that there was a part of me that was still very emotional about it. After my mini breakdown I found myself wondering when if ever that part of me will begin to heal and be less painful. That also got me thinking. Do I really want it to go away? It is part of who I am now and it is part of Korbin although he will never remember it. I think that maybe that "raw" part of me is what reminds me how blessed we are and how good, powerful and almighty God is. No, I don't like crying when a song comes on the radio or when I see a baby born too early on television or even when someone I know has a baby too early but I think that this may be my testament. Although I don't know what God's plan was or is for that matter but I wonder if that is why he gave me Korbin and chose to let my little angel stay with us: so that Korbin and I could be a testament and show the world his power.
I guess with the holidays quickly approaching and this year quickly passing us by I have been doing some soul searching. Again, I feel that I can't thank everyone enough but thank you all for your continuing prayers for my family and my little warrior, God's warrior.
Sabrina
We are still watching his progress with his fisted hands and his foot that has excess tone. His legs also have a bit more tone than normal which may prevent him from chewing on and playing with his feet but that is pretty small in the grand scheme of things. The OT and I discussed again the likelyhood of him being diagnosed with CP since he is a bit older now. What she told me wasn't really surprising. She believes that he will be diagnosed with at least a mild CP since he just hasn't let go of the excess tone. We have noticed him compensating for his fisted hands by grabbing things like his bottle with his fists. So far though, it seems like the worst case scenario is him needing AFO's or braces on his foot and possibly splints on his hands at night. If that is all we will need then I wm okay with that.
I realized tonight how raw I still am about the trauma of his birth. A song on the radio touched a nerve tonight and made me see that I am still not "over" his almost tragic birth. I still think about it regularly and thank God daily for giving him to me and allowing him to stay with me but I guess I didn't realize that there was a part of me that was still very emotional about it. After my mini breakdown I found myself wondering when if ever that part of me will begin to heal and be less painful. That also got me thinking. Do I really want it to go away? It is part of who I am now and it is part of Korbin although he will never remember it. I think that maybe that "raw" part of me is what reminds me how blessed we are and how good, powerful and almighty God is. No, I don't like crying when a song comes on the radio or when I see a baby born too early on television or even when someone I know has a baby too early but I think that this may be my testament. Although I don't know what God's plan was or is for that matter but I wonder if that is why he gave me Korbin and chose to let my little angel stay with us: so that Korbin and I could be a testament and show the world his power.
I guess with the holidays quickly approaching and this year quickly passing us by I have been doing some soul searching. Again, I feel that I can't thank everyone enough but thank you all for your continuing prayers for my family and my little warrior, God's warrior.
Sabrina
Saturday, November 1, 2008
Take that Dr. Gloom!!!
Well, just a quick update. There has been a good deal of progress since we came home from New Orleans. Korbin is now 6.5 months old, 4.5 months adjusted and weighs 13 lbs 11 ozs and is 24 1/4 inches long. He has started rolling over and is all over the place. He also decided today that he was tired of just sitting there and decided to start trying to crawl. He has been doing wonderfully on his milestones and is just growing more and more everyday.
Thursday, October 16, 2008
The roller coaster that is my life!
Whew a lot has happened over the past couple of days! As you all may know that we went to New Orleans this week for a multitude of appointments and tests. We started the busy week with another EEG. I haven't received the official results but I am sure that it turned out okay. We saw an eye Dr. since we noticed Korbin's eyes sticking a bit. She found nothing major and wants to follow up in 2 months for the issues that she did see.
Well, the MRI was scheduled for Wednesday morning. Well, as we all know that nothing can go completely smoothly for us. We get checked in for him to be put to sleep and after a lot of discussions and many opinions, it was decided that there was no sense in putting him to sleep 2 days in a row and would just put him to sleep, do the MRI and then do the surgery while he was already out (which I had originally suggested but that is a whole other story in itself). Well, because of all of the commotion, we ended up with an unscheduled appointment with the Neurosurgeon. After looking at his latest stats, he informed me that he was no longer 100% positive that there was a need for the shunt. We decided that since the MRI was necessary regardless, that we would go forth with that and then make a decision immediately following the MRI.
That brings me to today, the MRI and surgery date. Well, the surgeon accompanied Korbin to his MRI so that he could see the images as they were coming. Well, he decided that the MRI showed that things were NOT as bad as expected and that he did NOT see a need for surgery!!!! I was floored. I just knew that there was no way to have a whole slew of appointments with no terrible news! On top of that, it appears that the calcium deposits are gone and the Dandy-Walker Cyst is not as prominant as once expected! We will still follow up with the NS every 3 months but if there has been no major changes by the time he is 18 months old, we will part and go our separate ways!
There is no question that God has laid his healing hands on Korbin. I am honestly in awe of the power of the good Lord above. I have never doubted his power but to see the power of prayer and to see yet another miracle first hand is nothing short of amazing. Korbin has been meeting all of his milestones on time which is also very exciting. We do still have some tone issues but ya know, if that is all we have to deal with then so be it. God has blessed us thus far and I am greatful for it all.
Thank you all so much for your prayers! God bless you all!
Sabrina
Well, the MRI was scheduled for Wednesday morning. Well, as we all know that nothing can go completely smoothly for us. We get checked in for him to be put to sleep and after a lot of discussions and many opinions, it was decided that there was no sense in putting him to sleep 2 days in a row and would just put him to sleep, do the MRI and then do the surgery while he was already out (which I had originally suggested but that is a whole other story in itself). Well, because of all of the commotion, we ended up with an unscheduled appointment with the Neurosurgeon. After looking at his latest stats, he informed me that he was no longer 100% positive that there was a need for the shunt. We decided that since the MRI was necessary regardless, that we would go forth with that and then make a decision immediately following the MRI.
That brings me to today, the MRI and surgery date. Well, the surgeon accompanied Korbin to his MRI so that he could see the images as they were coming. Well, he decided that the MRI showed that things were NOT as bad as expected and that he did NOT see a need for surgery!!!! I was floored. I just knew that there was no way to have a whole slew of appointments with no terrible news! On top of that, it appears that the calcium deposits are gone and the Dandy-Walker Cyst is not as prominant as once expected! We will still follow up with the NS every 3 months but if there has been no major changes by the time he is 18 months old, we will part and go our separate ways!
There is no question that God has laid his healing hands on Korbin. I am honestly in awe of the power of the good Lord above. I have never doubted his power but to see the power of prayer and to see yet another miracle first hand is nothing short of amazing. Korbin has been meeting all of his milestones on time which is also very exciting. We do still have some tone issues but ya know, if that is all we have to deal with then so be it. God has blessed us thus far and I am greatful for it all.
Thank you all so much for your prayers! God bless you all!
Sabrina
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