Wednesday, August 13, 2008

Almost 4 months....unbelievable!

Again I have slacked a little on updates but in a way that is really a good thing. That means that things are relatively uneventful.
First off, as of last week, Korbin weighed 9lbs 6ozs!!!!!!!!!!
Going back to the last post, we have not had too much happen. We saw the neurologist at the end of last month and that went okay. She was a bit concerned about some jerking activity that his leg was doing so she sent us for an EEG, which came back.......get this......NORMAL!!!!!!!!! I can't help but think that maybe we are starting to take a turn down a road that is just a little less eventful!
She was evaluating Korbin and mentioned that his little toe is bent a little funny. I never thought much of this since many of the folks in my family wouldn't even be runner ups for an ugly foot commercial (they are far too ugly)! During the evaluation I mentioned the hypospadia that was recently discovered. She seemed a little surprised and asked me if there had ever been any genetics testing done. There hasn't been. I asked her what would be causing her to even ask that. She told me that there were some physical anomolies that alone would mean nothing but together could mean a possible genetic issue. The anomolies that she was referring to was the toe, the hypospadia, the brain malformation, and low set ears. We had that test done also that day and are still awaiting the results. The results will do nothing more than be informative. If there does end up being something, Robbie and I will have to be tested to see if we are carriers of something or if it was a fluke.
We did have a little scare that resulted in an immediate CT scan but that all came back okay. We did discover that Korbin has been suffering from reflux and began treating that. We have completed speech therapy and are just doing occupational therapy once every other week. Over the last two weeks, Korbin has changed so much. He is smiling, cooing a little, sucking on his hands and really, just being a baby. I have really been able to relax over the last couple weeks. I am not so nervous about every little twitch. I have really been able to enjoy him rather than fear the things I couldn't control. His OT this week went wonderfully. The therapist was very impressed at the improvement that the two weeks brought. I don't know if the therapy will continue if he continues to improve. They may continue in order to just monitor him at least until he reaches the 6 month (corrected, not actual) mark. 6 months is the magic number for major motor and to know if we are possibly looking at cerebral palsy. We will go back to N.O. in a couple of weeks for another CT and another visit with the neurosurgeon. The visit following this will be the one that we are all waiting for. It will be the MRI, plus he will also be at the 6 month mark so we should know a lot at that time.
As always, I appreciate all of the prayers and thoughts. I will probably update again after our next N.O. visit. By then we will have another OT appt. and his 4 month check up and hoping to have the results of the genetic test.
Thanks again!
Sabrina