10 weeks

This week has been fairly busy. I had my visit with the local neurologist only to discover that I will still need to go to New Orleans. It turns out that I was seeing the neurosurgeon in New Orleans. Nothing really new was discovered at the neurologist since we are still not able to have an MRI due to Korbin's age and size and developmentally, we are not able to tell much right now either. At the pediatrician today everything looked good except for weight gain. Korbin gained 10 ozs in 14 days but the Dr. really was wanting him to gain 14 ozs. We are changing how I make his formula in order to make it 24 calories. If he doesn't do well with the new mixture then we will have to change his formula all together to a 24 cal formula. The Dr. also wants to check and make sure he is swallowing properly when he is eating. We have an appointment with the speech therapist to do a scan of him swallowing next week to hopefully rule out any problems in that area. Right now, we are giving him the benefit of the doubt and just going to try increasing his calories and logging his exact intake in ounces each day. If he doesn't start packing on the pounds soon, we will have to resort to a "last resort" option which is defintiely not the most appealing of options. If he doesn't start making some progress we will have to begin talking about a feeding tube to get him to gain some weight. I am really hoping it doesn't come to that because that thought is terrible. On a positive note though, his movement and tone looked good today. There was one excersise that the Dr. performed that Korbin did well on but the Dr said he could have done better but we are just going to keep an eye on it. We discussed in detail infromation on seizures since Korbin is at a high risk of having them. We will go back in 2 weeks for yet another weight check and another measure of his head (which is still growing normally). It seems as though the first weeks were just a precursor of things to come. Please continue to keep us in your prayers.
Sabrina